Uncertainty of parents due to having children with cancer: A concept analysis
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Keywords

cancer
children
concept analysis
parents
uncertainty

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Nurhidayah, I., Nurhaeni, N., Allenidekania, A., Gayatri, D., & Rustina, Y. (2023). Uncertainty of parents due to having children with cancer: A concept analysis. Belitung Nursing Journal, 9(3), 218–226. https://doi.org/10.33546/bnj.2612
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Accepted for publication: 2023-05-19
Peer reviewed: Yes

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Abstract

Background: Parents of newly diagnosed cancer children often experience significant concerns about the implications of the diagnosis. They find themselves in challenging decision-making situations, navigating through uncertain conditions following the disclosure. Uncertainty is a prevailing issue in healthcare, yet its interpretation and application within the context of health and nursing practice exhibit multiple meanings and variations.  

Objective: This study aimed to clarify the concept of parental uncertainty arising from having children with cancer.                                                             

Methods: The concept analysis followed the steps outlined by Walker and Avant. A thorough literature search was conducted using the Embase, CINAHL, and MEDLINE databases to identify articles published between 1980 and 2022.

Results: The literature search yielded 147 articles from various disciplines, including health, nursing, medicine, psycho-oncology, and management. After analysis, 20 articles were selected for inclusion. This study identified four key attributes of parental uncertainty associated with having a child with cancer: (1) emotional disturbance, (2) unpredictability, (3) insufficient information, and (4) problems with decision-making. The antecedents of parental uncertainty encompassed the complexity of the disease, the diagnostic and treatment processes, the hospital environment, communication, and support from credible authorities. The consequences of parental uncertainty included the pursuit of new information, parental adaptability to their role, and parental distress.

Conclusion: Understanding the four attributes of parental uncertainty, along with their antecedents and consequences, can facilitate the future development and operational translation of the concept of uncertainty in nursing practice. This concept is valuable in the evidence-based provision of nursing care to parents of children with cancer, enabling comprehensive recognition and assessment of parental uncertainty and the implementation of appropriate interventions that are sensitive to parental experiences. Ultimately, this approach promotes the adaptation of both the child and the parent.

https://doi.org/10.33546/bnj.2612
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Supporting Agencies

Indonesian Education Scholarship for Postgraduate Program, provided by Center for Education Financial Services - The Ministry of Education, Culture, Research and Technology, Republic of Indonesia, in collaboration with Educational Fund Management Institution – Ministry of Finance, Republic of Indonesia

Copyright

Copyright (c) 2023 Ikeu Nurhidayah, Nani Nurhaeni, Allenidekania Allenidekania, Dewi Gayatri, Yeni Rustina

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

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Declaration of Conflicting Interest

The authors declare that no significant competing financial, professional, or personal interests might have affected the performance or presentation of the work described in this manuscript.

Funding

Indonesian Education Scholarship for Postgraduate Program, provided by Center for Education Financial Services - The Ministry of Education, Culture, Research and Technology, Republic of Indonesia, in collaboration with Educational Fund Management Institution – Ministry of Finance, Republic of Indonesia. Recipient: Ikeu Nurhidayah.

Acknowledgment

The authors thank the Center for Education Financial Services of the Ministry of Education of the Republic of Indonesia for providing doctoral scholarships to the first author through the Indonesian Education Scholarship. In addition, the authors would like to express their gratitude to Universitas Indonesia and Universitas Padjadjaran for their academic support.

Authors’ Contributions

All authors contributed to this article. Study concept and design: IN and NN; writing of the manuscript: IN and AA; critical revision of the manuscript: IN, DG, and YR. The revised manuscript was reviewed and approved by all authors.

Ethical Consideration

Not applicable.

Data Availability

Not applicable.

Declaration of Use of AI in Scientific Writing

Nothing to declare.


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